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Beliving for DESI

These past couple days have not been easy. Today was even worse.

This post has been around for awhile in my draft folder for I know my words may not be very well written....I just never know if I have the right words to say but here goes for Desi

The beautiful baby girl pictured above is Desirae Ava Grace Cechin
She is 6 years old and has been battling cancer since the tender age of 4 years old.

Her diagnosis at only 4 was one of the worst, Stage 4 Neuroblastoma.  
A disease that captures almost 50% of all cancers in children. Mostly under the age of 10 years old. There is a wealth of information on the web, so go ahead and research it.

I am not here to explain the cancer, I am here to talk about little Desi...

Desi Is the most Beautiful and Happiest  ray of sunshine in this lifetime!
Her smile can lite a fire.
Her eyes stare right through your soul.
Her voice is booming with song.

Her soul radiates with such energy that you just feel it!

Desi is a force! 
Dont believe should!!

Desi always made me smile with just her smile. Her spunky, sweet personality made so many smile!
Her favorite color is Purple. Her favorite singer Taylor Swift

Desi has fought hard with a smile on her face and a heart so much full of love. 
Doctors continually said how she was so strong. That her abilities to fight were un-heard of.

She taught me what life should be. She taught so many....
She reminded us to have Happiness and Strenght under fire.

She brought this whole city together.
Our community rallies around her like I have never seen it before.
Desi makes this world better.
She gives love and teaches us to love eachother.

She affected so many people
Near and far

It breaks my heart. It breaks my soul. 
Why must our children suffer from this awful disease? Why is there not a cure yet? Why? Why?
Little Warrior Princess Desi has passed away, on this day March 17th. 6:44pm
My heart is heavy. I cannot breathe. I couldn't sleep but...
My pain is so minimal compared to that of her mother

That force I was talking about , is backed by thousands. Thousands who are ready to fight. That have her back and coutless other backs of kids who are fighting this awful disease.

We need to fight for our children. FIGHT for funding that is needed. Fight! If these kids can fight this disease with a strenght we will never know...then we can surely fight for a cure!

Every single child deserves his/her life! 

This just enrages me...#fuckcancer 



Little Desi may not be here physically anymore but her soul and that force is!

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